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Dr.
Angela Campbell & Dr. Ray Woods
Australia |
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Patient
CharlieChaplin's Reviews |
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To the members of the community:
My two-year
process of exploring the option of surgical hair restoration came
to an end last month, when I underwent four procedures (a little
over 2400 follicular unit grafts) with Drs. Woods and Campbell.
The surgeries went very well, yet as I think about the exhaustive
and exhausting nature of the research that led me to my decision,
I realize that the research process was considerably more
difficult for me than the actual surgeries (although I
unconditionally caution fellow community members not to take any
surgery lightly, as even in the most capable hands it is a serious
matter).
Why was the
research process so difficult, so draining, and at times, so
discouraging? After learning about the pain and suffering
inflicted upon so many good people (many of whom whose selfless
help made a major difference for me in my decision making
process), I reached an understanding with myself that if I was
going to go forward with a surgery (or surgeries), I had to
protect myself against making a hasty choice based upon
desperation to deal with my hair loss. I absolutely had to accept
the principle that I, as a prospective patient, had certain
inalienable rights.
Accordingly, in
order for any surgeon(s) of any reputation to touch my head or get
a penny from me, they needed to--and without exception--meet
certain requirements and perform surgery in a manner that
protected my rights as a patient. I had a list that essentially
coincided with the list Dr. Woods and Dr. Campbell have just
posted. My research process ended when I learned in the fall,
through what I felt was sufficient evidence, that these two
surgeons could meet the requirements I set.
As a patient in
general, not only as a "Woods patient", I want to expand
upon the value of taking such a list seriously.
First, my
decision-making process did not involve entirely self-imposed
discipline. Posts from and email correspondence with patients,
many of whom were repair patients whose lives had been
unimaginably altered by the lack of insights such as theirs when
they first took the surgical route, reinforced in the starkest,
most human of ways my understanding of the consequences of
abandoning the standards that I came to know were important to
hold as sacrosanct. It was really a group effort, with many of the
posters here playing a role of value in my life of which they were
not aware. I think patients and prospective patients need to stick
together through thick and thin. Done alone, without an
understanding of what I needed to look for, a different decision
with unimaginable consequences would have been a likely outcome.
Second, I want us
to make sure the bar is raised and kept high for the standard of
care to which we are entitled--a standard that is not
scientifically or practically impossible yet requires high levels
of skill, ethics, and dedication to the idea of the patient as a
person (rather than as part of a schedule, part of a projected
income, or part of a hair transplant marketer's concept of a
target audience). For years, hair transplant patients have had an
unacceptably low level of control over the process. Only with the
advent of Internet forums has the hair transplant industry been
forced to really move closer to standards of care that patients
demand, rather than generally adhere to the minimum standard of
care required to remain economically viable. The increased
interest of doctors in non-strip methods, in my opinion, is a
perfect example of the power patients can have when they unite
behind the concept of their rights to better care.
Third, I look
forward to the day when any person looking into surgical hair
restoration can walk into any clinic, question any doctor, and/or
consider any surgery with the benefit of a checklist like this
containing their basic rights, that if not capable of being met,
can prevent that person from making a life-altering mistake. I
look forward to the day when hair transplant surgeons know that
they must be able to honor those rights through word and deed or
look for another line of work.
I want to place
Dr. Woods' and Dr. Campbell's list in the context of my own
experience.
<< 1. No
Strip Excision to be performed or offered by the clinic >>
Honor thy new
technologies! I think there is growing agreement on this point, as
evidenced by the number of surgeons looking into this avenue of
treatment.
<< 2. No
assistants. Only a 1 to 1 doctor patient ratio.
The day a patient decides to alter their appearance via hair
transplantation is one of the most important days in their life.
They deserve the absolute attention of a skilled micro surgeon
throughout the entire removal and placement of every follicle.
>>
Honor thy concept
of medical school! You pick a doctor based on the doctor. The
doctor has the medical degree. You look at previous patients based
on who the doctor was. You consider the doctor's reputation and
history. Your consult(s) should be with the doctor. A transplant
involves the removal of donor follicles and their relocation to
the recipient area. The transplant doctor should perform the
transplant from start to finish.
<< 3. No
legal disclaimer This allows lawyers to defend the indefensible
results of poor surgery.
4. All doctors
are to be fully trained, assessed and accredited according to a
strict code of conduct, ethics and ability. All
surgery is to be performed according to highly skilled
microsurgical standards and discipline.
5. Patient
interaction and intra-operative monitoring of follicular placement
>>
Honor thy
patient's eyesight! Dr. Woods and Dr. Campbell allowed me to view
the removal of the first 100 follicles in the first procedure (to
have done it for all 2400 follicles over four days would have
taken far too much time, viewing 50 per procedure is probably more
practical than 100), the condition of the neighboring follicles,
and the live placement of the follicles on a large monitor with
the benefit of the 35-power Zeiss magnification they used. I
didn't have to take Dr. Woods or Dr. Campbell at their word on
things, they were happy to show me what was being done to my head
and to my follicles so I would know what was happening.
<< 6.
Largest instrument to be used for follicular placement is a 21
gauge hypodermic needle >>
Honor thy
recipient area! If the follicle upon removal is in proper shape
and therefore not surrounded by dermis or other excessive tissue,
there is no need to use a placement tool larger than a 21-gauge
needle. No scalpels, slits, slots, etc. Dr. Woods and Dr. Campbell
use the 21-gauge and quite often the 23-gauge (even for many
3-hair follicles; Dr. Woods actually used the 23-gauge for an
entire section close to the front) and used only the bevel of the
needles to make the sites and the follicles are now securely in;
the use of these small needles did not compromise their ability to
orient the follicles in endeavors as careful as recreating the
swirl of the crown (done by Dr. Campbell). There's simply no need
to take risks with anything more traumatic. While there are people
who will heal properly from an 18-gauge needle or even some of the
scalpel methods, no one should have to belong to that group of
patients who "somehow got scarred" because a doctor
thought a certain more traumatic instrument was better to use for
any reason that compromised the outcome of that single patient.
One mistake is one too many and one mistake that was avoidable is
unconscionable, in my view.
<< 7.
Random intra operative video assessment of follicular removal from
the donor site verifying transaction rate directly to the patient.
>>
Like I said, I
think the patient should be able to see around 10% via video, in
order to ensure:
<< 8.
Donor Site Conservation and Protection. >>
Honor thy donor
follicles! I kept close track of the transection rate during the
first two of my four procedures. The transection rate for the
first procedure was 1.66%, the transection rate for the second one
was 2.00%--of the small number of follicles transection upon
extraction, most will grow when placed back into the donor area. I
am a Norwood 4/5 and barring Propecia having more staying power
than I can imagine, I will become a Norwood 6. Having dark, fine
donor hair, I could ill afford to have my donor supply poorly
harvested. Wasting follicles was simply not an option for me, nor
should it be for anyone, especially since it is entirely
avoidable.
And, Honor thy
donor follicles' neighbors! Not only was it important to avoid
wasting follicles being extracted, but also to keep follicles that
may be used in future surgeries from being damaged or destroyed.
Every donor follicle counts, whether it's being harvested for
grafting now, being saved for future use, or just being used to
serve its purpose in covering the donor area.
<< 9. No
intravenous sedation or analgesia. The patient should be aware,
lucid, fully informed and interacting during the procedure. Drugs
that significantly affect the patients' ability to make decisions
and interact must not be used.
10. Do No
Harm. >>
Honor thy peace
of mind! It took me two years, countless hours of research, and
the only people I felt could guarantee they would honor the most
basic tenet of the Hippocratic Oath were half a world away. (And I
was a virgin scalp, not a repair patient.) I hope that every
doctor in between here and Australia (and on the side of world my
plane didn't fly over) reads this last comment, not with a sense
of personal bitterness, but with the understanding that I was and
am not alone in thinking this (as evidenced by the other
"Woods patients").
*To Dr. Woods'
list, I would only add the following corollary:
THE RIGHT TO
NON-EXISTENT/NEGLIGIBLE SHOCK LOSS ("Honor thy existing
follicles"): One of the most difficult points of my research
was a consultation with an American transplant surgeon who is on
all the recommended lists and considered an expert among experts.
He first gave me a prescription for Propecia to save my
miniaturizing follicles and then within minutes devised a surgical
plan that would involve, by his own admission, substantial and
permanent shock loss of most of the very follicles the Propecia
was prescribed to save. The plan involved transplanting through
most of the existing hair. The phrase, "the hair you get to
keep after telogen effluvium" was literally used, as if
keeping my pre-existing hair was some kind of gift. A couple of
weeks after my Woods/Campbell procedures, I can report that
despite having quite a bit of cosmetically noticeable miniaturized
hair (making me as clear a target for shock loss as their can be),
I have experienced no noticeable shock loss (if I do, you will
know and I will retract this point). It appears I did not have to
"take one step back to take two steps forward." When I
did the math, I realized this shock loss nonsense involved taking
one step forward when the doctor admits that two steps are
desirable and cosmetically necessary to make the surgery
worthwhile. We are paying doctors to add hair to the recipient
area, not to take it away and hope for a net gain (unfortunately,
I spoke with several people who ended up having a net loss from
their surgeries due to shock loss). Just as it is important to use
donor follicles well and to avoid damaging future donor follicles,
the preservation of existing follicles in the recipient areas
is--as long as Propecia continues to work--still a big part of the
overall coverage. If people are going to lose hair, it should be
because Mother Nature won out, not because a surgeon freely chose
to use techniques that could not avoid or severely limit shock
loss.
IN CONCLUSION, I
IMPLORE MY FELLOW COMMUNITY MEMBERS TO TAKE THE IDEA OF A
PATIENT'S BILL OF RIGHTS BASED ON THESE CONCEPTS SERIOUSLY, AS
THEY APPEAR TO HAVE SERVED ME WELL AND PERHAPS AVERTED AN
EMOTIONALLY CATASTROPHIC DECISION. EVEN IF YOU DISAGREE WITH SOME
OF DR. WOODS' AND DR. CAMPBELL'S POINTS IN TONE OR CONTENT, KEEP
THIS DISCUSSION GOING AND PUTTING ASIDE PERSONAL RIVALRIES OR THE
DESIRE TO SCORE POINTS ON OUR FELLOW POSTERS; LET'S REALLY TRY TO
MAKE THIS WORK. IF THE TECHNOLOGY EXISTS, AND IF OUR DEDICATION TO
THE IDEA OF OUR RIGHTS AS PATIENTS IS THERE IN FULL FORCE, IT CAN
WORK.
CharlieChaplin
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